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Date
October 1, 2005
Name
Ellyn Kodroff
Email
ellynk11@aol.com
Home Page
City
State
Country
Comments
What a great web site! Thank you Sari!!!!!!!!!!!!!
Date
October 2, 2005
Name
Phyllis
Email
mydaughterhasEG@comcast.net
Home Page
http://www3.caringbridge.org/nj/aj/
City
Galloway (outside Atlantic City)
State
NJ
Country
USA
Comments
Thanks for all you do!!!!!!!!!! Phyllis, Larry, Remi and AJ
Date
October 2, 2005
Name
Julie
Email
Home Page
http://members.cox.net/jrpatter2/jessica/jess1.htm
City
State
Kansas
Country
Comments
Wow! The new webpage looks great. I will spread the word and help raise awareness whenever I can!! The more we know the sooner we can find a CURE!!
Date
October 2, 2005
Name
Brianna Hood
Email
bndhood@juno.com
Home Page
City
Tipp City
State
Ohio
Country
US
Comments
Date
October 3, 2005
Name
lauren
Email
Home Page
City
State
Country
Comments
hi mom
Date
October 3, 2005
Name
DERF
Email
Home Page
City
State
Country
Comments
I LOVE YOU AND THANKS SARI...YOU'RE BOTH GREAT!!!
Date
October 3, 2005
Name
DERF
Email
Home Page
City
State
Country
Comments
ELLYN IS WHO I LOVE, I LIKE SARI ALOT, AND YOU ARE BOTH GREAT, IS WHAT I MEANT TO SAY!!!
Date
October 3, 2005
Name
sandra griesemer
Email
sgriesemer@wi.rr.com
Home Page
City
Oconomowoc
State
wi
Country
waukesha
Comments
Date
October 3, 2005
Name
JS
Email
Home Page
City
State
WA
Country
USA
Comments
Thanks for all your hard work raising funds for a cure for these terrible diseases! -JS
Date
October 4, 2005
Name
Margaret Miller
Email
mjkmiller@comcast.net
Home Page
932 N. Lombard
City
Oak Park
State
IL
Country
Cook
Comments
My son was diagnosed with EE in December of 2003. He is currently drinking the Neocate E028 and eating hamburger only. He also has asthma and a high degree of IgE allergies.
Date
October 4, 2005
Name
Diane Busard
Email
dianebusard@aol.com
Home Page
City
Novi
State
MI
Country
Comments
Wow.It's exciting to watch the new website being built. Great work.
Date
October 5, 2005
Name
Marc & Shay Kyle
Email
scholeighkyle@aol.com
Home Page
City
Davison
State
Michigan
Country
USA
Comments
What a New Beautiful Site!! Glad to see that CURED is growing for all the beautiful work you do!
Date
December 27, 2005
Name
Melissa Milliron
Email
rynmsy@zoominternet.net
Home Page
City
Pittsburgh
State
PA
Country
USA
Comments
I give you all the credit for helping others with this organization! Thank you! My daughter was diagnosed with EE after suffering from many symptoms for months. She is now three and eat apples, rice and potatoes only. My frustration is why aren't more doctors, etc. helping these kids????
Date
January 13, 2006
Name
chantal arkenbout
Email
chantalarkenbout@tiscali.nl
Home Page
City
vlaardingen
State
Country
netherlands
Comments
It was very interresting to read something about my diseas i have got EE in my small intestin in the netherlands there is not much to read about it thank you for the information.
Date
January 13, 2006
Name
Jeff Boutin
Email
Jboutin@Arkwright.com
Home Page
City
Narragansett
State
RI
Country
USA
Comments
I am glad to see an organization liked CURED. I didn't realize it existed. Unfortunately, this probably means EE is gaining in numbers. I suffer from a EG. Thank you for making my day.
Date
January 13, 2006
Name
beth shemerdiak
Email
Haley2112@verizon.net
Home Page
City
Mckees Rocks
State
pa
Country
USA
Comments
Date
January 26, 2006
Name
Sandy Zook
Email
Home Page
City
State
Country
Comments
Date
January 27, 2006
Name
Karen Shurina
Email
theshurinas@relymail.com
Home Page
City
Vandergrift
State
PA
Country
USA
Comments
My 5 year old son has EE and food allergies. It seems like becomes allergic to everything he eats. Any advice would be greatly appreciated.
Date
February 2, 2006
Name
Brooke Decker
Email
Home Page
City
State
Pennsylvania
Country
Comments
My 16 month old son has been diagnosed with EE, EGE, and EC.
Date
February 5, 2006
Name
chuck knight
Email
comptemp1976@hotmail.com
Home Page
City
Toledo
State
Ohio
Country
USA
Comments
Progress in research is taken in baby steps
Date
February 12, 2006
Name
kelly Borganti
Email
Borganti@msn.com
Home Page
City
charleston
State
sc
Country
usa
Comments
Ellyn, I met you in Boston and you told me you were going to do this. Congrats. Good news is my son, Andrew remained symptom free for 2 years and just had a major flare and the disease is active once againin the eosophagus. Thanks for your work. Kelly
Date
February 14, 2006
Name
Susan McCartney
Email
gunnarboy13@hotmail.com
Home Page
City
Berryton
State
Kansas
Country
USA
Comments
My daughter is 19 and is currently under going S/P Maloney Dilation every 4-6 weeks for Esophageal Stricture. After reading article I wonder if we have missed something?
Date
February 17, 2006
Name
Nancy
Email
nblubaugh@shadysideacademy.org
Home Page
City
Lower Burrell
State
PA
Country
USA
Comments
My adult daughter, age 28, was diagnosed through biopsies only 2 years ago. Biopsies show she was misdiagnosed from, probably, age 8. She is very ill and we are running out of hope. We appreciate all you do the EOS.
Date
February 21, 2006
Name
Cindy Harless
Email
charless@eaglexhibit.com
Home Page
City
Bellville
State
Ohio
Country
USA
Comments
My 13 year old son, Austin, was diagnosed 3 years ago with eosinophilic esophagitis. He has multiple food allergies.
Date
February 21, 2006
Name
anne baronitis
Email
abaronitis@hotmail.com
Home Page
City
bellaire
State
tx
Country
usa
Comments